up, down, all around

     I should be writing a post but I am too tired. I am in the middle of my last week of 'holiday' from treatment cycles. I have done so well! I have to keep telling myself how it used to be. I keep forgetting. Give me a good day or two, and my bad days are all but forgotten. So, why am I so tired? A bunch of reasons I suppose. Most of all, I have been super busy. Which is great, esp. since I used to have a much shorter 'shelf life' than recently. The biggest fallback to being busy is that it exacerbates symptoms if I am not careful. Yesterday I cleaned my poor house all day and fell asleep for the night at 7:00. Today I woke a little nauseous, but still went out. Tonight I am nauseous and tired and sweaty and clammy, and yucky. Monday I start my new treatment cycle. It will get better or worse, I don't know until I do it. I dread it and yet it saves me. Like Chemo for someone with cancer I suppose. You dread it, but it can make you better.
   Push through it Amy, you can do it.
   Goodnight. And pay no attention to the fact I make no sense.

Lyme Relief

  

        In my last personal post I reported how lousy I felt and how discouraging it can be to be haunted from Lyme for years on end. Because it hides from antibodies and antibiotics, you have to KILL all forms of the infection, at the same time, over and over and over and over again. Even then, I won't kill them all. Bummmer.
        However, I do feel better today, my fever lifted for now, my headache is gone, and I have let go of my discouragement once again. I am still tired, even after just waking up. It's not like it used to be, I used to be 80% in bed or on the couch in these deep "Lyme Coma's". I couldn't wake from them. They seldom occur anymore.
        The biggest Lyme relief occurred yesterday. I got home from a quick trip with my mom and daughter, and on my front steps were two beautifully made flower pots in beautiful clay pots. And they weren't tiny, they were large and packed with my favorite flowers. No name, no card, just a surprise left for me. Instantly, my discouragement went away and I was filled with gratitude for people who love me. NEVER underestimate the power of friendship and family. It lifts me out of my funky times, and gives me hope my life is still meaningful. (esp. since I don't talk on the phone much or go out to visit much) No one is fessing up to the deed, so I have to play detective now. Good, that will keep me busy.
        THANK YOU WHOEVER YOU ARE!!!!!!!!!

Lyme Disease in the South

Lyme Disease in the South

you have got to watch this brave young woman

My Lyme Day Today

      Today has been kind of hard. I started in on low grade fevers a couple of days ago. Lower back pain and mid spine pain. I can now tell if the pain is deep in the spine or inflammation around the disks. That's how long I have been experiencing this.
     Today is the kind of day I don't even tell my family about anymore. I just slug through and pretend I feel OK. They are so sick of my being sick, I feel like I don't want to say it anymore. I feel like a sub-par (to put it mildly) mother and wife and daughter. I can't be as active and energetic as I was way back when they were younger.
     Today I have to pray, lay, and fight.
     Today I need to remind myself that for decades I could not walk without feeling like I had no feet and I was walking on my exposed ankle bones. ouch. I had no appetite, I slept hours and hours and hours. I was confused, got lost driving, got pretty depressed and discouraged. Every joint in my body ached. I had headaches for days at a time. Etc., etc.. I was slowly dying, being eaten alive by parasites and bacteria. I spent many a night on the couch begging God to lift this from me. There was more than one tear.
    Today I am remembering that God lead me to a doctor who is helping me.
    Today was kind of a good day, in retrospect.

MY FB page

amyjo.sirianni@facebook.com

Lots and lots of good information

Jordan Jemsek meets blood marrow donor | CharlotteObserver.com

8-year-old Jordan Jemsek meets blood marrow donor | CharlotteObserver.com

Dr. Jemsek's daughter. This family knows the score. A strong family with a lot of faith.

WW Lyme Protest Photos

    On my Facebook page, as Maine Lyme Lady, you will find a whole lot of pictures from Lyme 'mobs', and protests from around the USA and the world. It makes an impact when you see them all together. There are a lot of us! If you are on FB, you should be able to find me at Maine Lyme Lady/Amy Jo Sirianni.  Go Lymies!