Sunday, Sept. 16th, 10 - 6p.m.
Thompson's Orchard
276 Gloucester Hill Rd
New Gloucester, Maine
$10.00 donation/family
bring lawn chairs, go to farmers market, pick apples, see information booths, and meet other Lymies
Wednesday, September 12, 2012
Under MY Skin..
Anyone who lives in Maine knows you have to cram 10 months of activities into two months every year. Visitors, visiting, beaches, mountains, gardens, etc., etc.. So, I am almost glad winter is coming. I am so worn out! I will be able to post regularly now, and I am excited about that. I have so much to tell, it is like it is bursting out of me. A lifetime of Lyme struggles makes a person ready to burst.
2008: The year of "Under our Skin". ahhhh. Of course I forget how I found out about the movie, but I don't forget going to see it. I was one of the lucky ones who went to a screening before it's release, in Rockland, at The Strand. (thank you for being brave, The Strand) Therefore, Andy Abrahams Wilson was there. We went in and took our seats. It is a good thing we were early because before the movie started I looked around and it was packed, even standing room was jammed. The movie began and as it unfolded a strange and eery feeling came over me. One of familiarity, understanding, compassion, fear, anger, and relief. Relief that FINALLY there was confirmation I was not alone, I indeed had company in this battle, and, there was no cure. ugh. I watched as the stories unfolded;the scientists who fight like children, the political cover-ups, insurance woes, financial woes (I know that one..) and the doctors battles.heroes that became real to me. Those who had stood up, researched, studied under the microscope, and treated the most controversial disease since Aids. I cried. Not wept, cried. Silent tears, one at a time, for most of the movie. My husband, next to me, began to understand my plight a little more, and that, too, brought a tear. If you have not seen the movie and you want to understand the seriousness of the disease because someone you know has it and you think they are just weird, then please, watch it! After the movie, Andy spoke about his experience making the film and the resistance in releasing it. His sister was his inspiration, as she had Lyme, so he had a personal experience with the disease. (infection) He asked how many people in the room either had Lyme Disease or knew of someone with Lyme disease. To every ones surprise almost every hand went up. Guess Lyme really is in Maine. Guess there are a lot of "me"s out there, close by! Who knew? Not me.
Unfortunately, the movie created a big taadoo in my doctors office and many others around the country. NO! NO! We won't treat! We won't diagnose! We won't use antibiotics long term! Ouch, ouch, ouch. Time to find a new Lyme doctor. One right out of 'Under Our Skin". Maybe the most controversial one! See, I had done my homework, for YEARS before this, and had enough of an understanding of the disease to believe in this doctors treatment plan. I saw his work right there in front of me in the documentary. Criticized but successful, how crazy is that? I have no regrets about my decision. I was right about him. Take that, you nutty scientists and doctors blocking progress!
2008: The year of "Under our Skin". ahhhh. Of course I forget how I found out about the movie, but I don't forget going to see it. I was one of the lucky ones who went to a screening before it's release, in Rockland, at The Strand. (thank you for being brave, The Strand) Therefore, Andy Abrahams Wilson was there. We went in and took our seats. It is a good thing we were early because before the movie started I looked around and it was packed, even standing room was jammed. The movie began and as it unfolded a strange and eery feeling came over me. One of familiarity, understanding, compassion, fear, anger, and relief. Relief that FINALLY there was confirmation I was not alone, I indeed had company in this battle, and, there was no cure. ugh. I watched as the stories unfolded;the scientists who fight like children, the political cover-ups, insurance woes, financial woes (I know that one..) and the doctors battles.heroes that became real to me. Those who had stood up, researched, studied under the microscope, and treated the most controversial disease since Aids. I cried. Not wept, cried. Silent tears, one at a time, for most of the movie. My husband, next to me, began to understand my plight a little more, and that, too, brought a tear. If you have not seen the movie and you want to understand the seriousness of the disease because someone you know has it and you think they are just weird, then please, watch it! After the movie, Andy spoke about his experience making the film and the resistance in releasing it. His sister was his inspiration, as she had Lyme, so he had a personal experience with the disease. (infection) He asked how many people in the room either had Lyme Disease or knew of someone with Lyme disease. To every ones surprise almost every hand went up. Guess Lyme really is in Maine. Guess there are a lot of "me"s out there, close by! Who knew? Not me.
Unfortunately, the movie created a big taadoo in my doctors office and many others around the country. NO! NO! We won't treat! We won't diagnose! We won't use antibiotics long term! Ouch, ouch, ouch. Time to find a new Lyme doctor. One right out of 'Under Our Skin". Maybe the most controversial one! See, I had done my homework, for YEARS before this, and had enough of an understanding of the disease to believe in this doctors treatment plan. I saw his work right there in front of me in the documentary. Criticized but successful, how crazy is that? I have no regrets about my decision. I was right about him. Take that, you nutty scientists and doctors blocking progress!
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