Sunday, May 26, 2013
Saturday, May 25, 2013
Thursday, May 23, 2013
Pic of my tick bite
Wednesday, May 22, 2013
up, down, all around
I should be writing a post but I am too tired. I am in the middle of my last week of 'holiday' from treatment cycles. I have done so well! I have to keep telling myself how it used to be. I keep forgetting. Give me a good day or two, and my bad days are all but forgotten. So, why am I so tired? A bunch of reasons I suppose. Most of all, I have been super busy. Which is great, esp. since I used to have a much shorter 'shelf life' than recently. The biggest fallback to being busy is that it exacerbates symptoms if I am not careful. Yesterday I cleaned my poor house all day and fell asleep for the night at 7:00. Today I woke a little nauseous, but still went out. Tonight I am nauseous and tired and sweaty and clammy, and yucky. Monday I start my new treatment cycle. It will get better or worse, I don't know until I do it. I dread it and yet it saves me. Like Chemo for someone with cancer I suppose. You dread it, but it can make you better.
Push through it Amy, you can do it.
Goodnight. And pay no attention to the fact I make no sense.
Saturday, May 18, 2013
Lyme Relief
In my last personal post I reported how lousy I felt and how discouraging it can be to be haunted from Lyme for years on end. Because it hides from antibodies and antibiotics, you have to KILL all forms of the infection, at the same time, over and over and over and over again. Even then, I won't kill them all. Bummmer.
However, I do feel better today, my fever lifted for now, my headache is gone, and I have let go of my discouragement once again. I am still tired, even after just waking up. It's not like it used to be, I used to be 80% in bed or on the couch in these deep "Lyme Coma's". I couldn't wake from them. They seldom occur anymore.
The biggest Lyme relief occurred yesterday. I got home from a quick trip with my mom and daughter, and on my front steps were two beautifully made flower pots in beautiful clay pots. And they weren't tiny, they were large and packed with my favorite flowers. No name, no card, just a surprise left for me. Instantly, my discouragement went away and I was filled with gratitude for people who love me. NEVER underestimate the power of friendship and family. It lifts me out of my funky times, and gives me hope my life is still meaningful. (esp. since I don't talk on the phone much or go out to visit much) No one is fessing up to the deed, so I have to play detective now. Good, that will keep me busy.
THANK YOU WHOEVER YOU ARE!!!!!!!!!
Thursday, May 16, 2013
My Lyme Day Today
Today has been kind of hard. I started in on low grade fevers a couple of days ago. Lower back pain and mid spine pain. I can now tell if the pain is deep in the spine or inflammation around the disks. That's how long I have been experiencing this.
Today is the kind of day I don't even tell my family about anymore. I just slug through and pretend I feel OK. They are so sick of my being sick, I feel like I don't want to say it anymore. I feel like a sub-par (to put it mildly) mother and wife and daughter. I can't be as active and energetic as I was way back when they were younger.
Today I have to pray, lay, and fight.
Today I need to remind myself that for decades I could not walk without feeling like I had no feet and I was walking on my exposed ankle bones. ouch. I had no appetite, I slept hours and hours and hours. I was confused, got lost driving, got pretty depressed and discouraged. Every joint in my body ached. I had headaches for days at a time. Etc., etc.. I was slowly dying, being eaten alive by parasites and bacteria. I spent many a night on the couch begging God to lift this from me. There was more than one tear.
Today I am remembering that God lead me to a doctor who is helping me.
Today was kind of a good day, in retrospect.
Wednesday, May 15, 2013
Tuesday, May 14, 2013
Jordan Jemsek meets blood marrow donor | CharlotteObserver.com
8-year-old Jordan Jemsek meets blood marrow donor | CharlotteObserver.com
Dr. Jemsek's daughter. This family knows the score. A strong family with a lot of faith.
Dr. Jemsek's daughter. This family knows the score. A strong family with a lot of faith.
Monday, May 13, 2013
WW Lyme Protest Photos
On my Facebook page, as Maine Lyme Lady, you will find a whole lot of pictures from Lyme 'mobs', and protests from around the USA and the world. It makes an impact when you see them all together. There are a lot of us! If you are on FB, you should be able to find me at Maine Lyme Lady/Amy Jo Sirianni. Go Lymies!
Saturday, May 11, 2013
Thursday, May 9, 2013
Tick Talk Ireland supports worldwide lyme disease protest
Look this up on You Tube, worth it. The name of the video is above. You may also find it at the worldwide protest web site or FB page.
The pic of the doc seen is my doctor in D. C., all the way from Ireland.
The pic of the doc seen is my doctor in D. C., all the way from Ireland.
"How goes my treatment?"
I am happy to say my treatment is going very well right now! Since finishing up the heavy duty treatment for both Borreliosis and Babesia, I am reaping the benefits. I love when this happens. It is a slow process of feeling good a few days, then, if treatment is working, the good days stretch longer, and the sick days decrease. I've been experiencing this a long time. (see first blog entries) Here is the best part; since enduring the winter treatment plan, I now feel terrific, and haven't felt this way in a very, very long time. Many years, as a matter of fact.
I ended my winter plan in April, had three plus weeks off, then began the new treatment plan, a much lighter one. It was much more easily endured, and herxing was light, happening the last three days of the two week plan. Now I am off treatment, for three weeks. It will be a good measure of how well I can hold my own. I'll be doing the two weeks 'on' (but only three days a week) and three weeks 'off' all summer, so I will be posting how I hold up. I have not had a three week 'off' cycle since beginning treatment. This helping to build up my own bodies ability to fight the infection on it's own, and helps gauge how much bacteria, etc. has been irradiated. How well I hold up during extended 'off' cycles is an indicator of a number of things. Detox is the name of the game even more now. I am in a good place to finish my goal of maintaining a healthy liver and lymph system so detoxing on my own can be effective.
I am praying this is truly the beginning of the end, and I hold up. If so, I decrease treatment once again when I go back to my doctor in August. Meanwhile it just plain feels good to feel good.
Lyme disease: Price skyrockets for doxycycline antibiotic | Minnesota Public Radio News
Lyme disease: Price skyrockets for doxycycline antibiotic | Minnesota Public Radio News
Great. What else can happen to delay treatment? Ugh.
Great. What else can happen to delay treatment? Ugh.
Tuesday, May 7, 2013
Monday, May 6, 2013
Lyme Mob in Maine!
Yesterday was the big day. Kickoff to "May is Lyme Awareness" month. Local businesses donated everything needed for the event, such as copies, tables, venue, water, and even a tick sculpture. My fellow Lymie friend and I brought our personal stories, and information from our different treatment plans. Very interesting. There are many options for treatment and people pick and choose to their liking. Seems like I have tried it all from homeopathic, to acupuncture, massage, hydrotherapy, over the counter pain killers, and vitamins and supplements. Not to mention antibiotics. My personal recommendation is to do them all, under the care of someone who knows the immune system and the bodies cellular needs. I feel blessed to have a doctor who is well rounded in his approach as well. That makes us a good match.
At the Lyme Event, we set up tables, had information out our ears for people, and a generous amount of information from my Vet on pets. I brought my dog who was diagnosed with Lyme two years ago and treated with three weeks of doxycycline. It was a general 'joke' that if you want more than two doxis' you need to go to your pets Vet. Not funny. We heard too many stories of people who were actually diagnosed and given 1 to 2 to 3 pills and told that was all they needed. I feel so sorry not only for those folks, but for doctors. The doctors today are stuck between a rock and a hard place. I'm not sure how hard they are fighting to get out of that spot, though. It is easier to leave it to specialists, it seems, and specialists who are effective in getting people BETTER are few and far between. And so the saga continues. One day, just like Polio, TB, and Aids, Lyme will be figured out, and a protocol which actually works with be determined. Ticks of the future will have to live with it. It's the people in between now and then who will suffer, being left with unanswered 'mysterious' neurological deficits.
Thursday, May 2, 2013
At Home Tick Drag
YOU TUBE VIDEO, title above, easy to find on you tube.
This is something easy to do at home! You can find out what is in your own backyard.
This is something easy to do at home! You can find out what is in your own backyard.
Wednesday, May 1, 2013
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