Saturday, December 29, 2012

Living Proof

There is a lot of controversy out there, even today, about the effectiveness of long term antibiotic treatment. I would encourage patients helped by long term antibiotics to ban together on this subject. We need an organization of long tern antibiotic survivors/success stories. How do we do that? Not sure, but there is a way. Perhaps a web site we could all sign off on and tell our stories on. This should be compiled and sent to legislature and the CDC/guideline acceptors. I know their are many of us out there. There must be thousands, maybe a lot more. Anyone know just how to start an organization like this? I would work along side someone. I am sick and tired of the stories I keep reading stating long term antibiotic treatment does not work. In my case I went to a specialist and received IV therapy, followed up with specific oral antibiotics to wash away the remaining Babesiosis and such. I am doing well, better than in years, all due to the therapy done by my specialist, Dr. Jemsek. He knows what he is doing and has 'saved' many lives. I know, I hear their stories, a lot like mine. I would like to see a reunion of these patients and perhaps that would lead to a public list of long term antibiotic success stories. I myself am LIVING PROOF that long tern Lyme Infection/Co-Infections persist and get worse over years and decades. I am also LIVING PROOF that proper treatment makes the symptoms dissipate. I am living again as I never thought I would. This is a challenge, come on people, even those around the world. I know you are out there, you read this blog. 2013 will be a year to stand up for ourselves and for others who are ridiculed by doctors and misdiagnosed like I was. Living proof, I am.