Tuesday, April 16, 2013

lyme apt. at JSC results


      I will always be grateful for the help I have gotten and continue to get from Dr. Jemsek. I know all the controversies, trust me. IDSA vs. ILADS, chronic vs. post lyme, antibiotics vs. alternatives, etc., etc.. BUT, for me, the only help I have gotten which has made a difference is from the expertise of Dr. Jemsek. Yes, it's been hard. Better to be battling for life, than unable to battle at all, though. That's where I was when I started with him. Unable to battle anymore, and losing the battle. There have been times in the past two years when I wondered what I was doing, and if it was the right thing. How does one have faith in treatment when treatment is hard and progress is slow? I don't, but I have faith in the good Lord above and I know he has his hand in this. My saving grace. Literally.
      At my apt., Dr. Jemsek and I discussed my latest symptoms compared to the ones I had in my September apt. at my January phone consult. I was able to report the ongoing fevers/sweats/chills had gone away since January. My top three concerns were fatigue, limb weakness, and word find.  He was not terribly concerned about these, as we are moving on the direction of getting rid of them. He did a thorough check of my neurological reflexes, and for the first time ever I was not sore to the touch anywhere! Not my neck, back, jaw, nothing. No twitching, no spasms, no pain. It was like I was a normal person. Even I was surprised! What a difference to be 'normal'.
     One of the most encouraging things was that he recognized that my Babesia is basically taken care of! That is why the fever chills have gone away.  That is why I can smile again! (at least some of the time....)
     However, no, I will not be taking the summer off from treatment. It was a nice fantasy, but that's it. I will be having a severely toned down treatment. I will have a much lower dosage of antibiotic, this time with Minocycline (another parasitic to get any left over Babesia, should I still some lingering). Two weeks on treatment, three weeks off. Should be good. Looking forward to a summer of feeling well most of the time. Yes, I will continue to feed my cells all the supplements they need to grow and regenerate. And eat right. Farmer's markets are just around the corner. Again, I am happy to have a doctor who tends to the whole body, and making me healthy on the cellular level. Without healthy mitochondria, we can't do too much.
     Interestingly enough, I realized I really was on the road to recovery when he described my brain as having been flushed of most of the biofilms and spirochetes and that I should pursue activities to rebuild areas of my brain which have been damaged. I just love that! I had one LLD tell me damage was permanent. Let me tell you, when you have a father like I did, whose heart regenerated a brand new artery around the damaged area, all by itself, you have an understanding of the capacity of the body to regenerate. My brain can be healed. (I know, some of you who know me are laughing) But in all honesty, even though I need to pursue it, I can do it. My biggest eyebrow lift came when he told me to start pursuing something that I have always wanted to do, but never have, as part of the brain stimulation. That was like opening the world to me again. Of course, the thing I have wanted to do is write a book. So, write I will. That ought to wear me out again. Guess the subject.
     The last thing I asked about was my stamina (fatigue related I think) and how to build it up. I complained that every time I have tried in the past to exercise,  I have paid for several days afterward, with pain and malaise. He assured me I should be past that point. What? Is this possible? I'll let you know. We all (my husband too) talked about Physical therapy vs. just doin' it. I admitted I needed motivation, and a strategy so I don't overdue it, and thought I could get that with P.T..  Evidently not. We took time right there to set up a plan of action until next time I see him. Just like in the old days, I need to stretch out, get my heart going a bit, then go for a nice gentle walk. I can expand as I am able.  PLEASE someone hold me accountable! I desperately want to be able to ride (horses), drive (cars), garden, hike, run, swim, wrestle with my dog, anything. I'll do my best.
      That's enough for me today. I am well on my way to recovery, but I want to keep on track, not go backwards. I need a little rest. Then time to make dinner. I am a very grateful woman today.

Cost of Seeing Dr. Jemsek Worth Every Penny

you.tu.be/DK0F9Ts8w8

or go to you tube and search title above. Thank you Claire!!