Monday, March 11, 2013

TBDA show Response


      I just finished watching the TBDA 'show', as they called it, (appropriately) and can't resist a few comments. First of you should know that concentrating that long (1 1/2 hrs.) has made my brain go into the 'brain fog' stage they spoke about. So, I will keep it short for today.
      I just had to shake my head at the first slide shown which said 60-75% of all Lyme patients have the bulls eye rash. NOT. How can they ignore all the patients and other research that has shown this not to be true. In my research, I look at all sides of the issue.  The consensus  I have come to is that approximately 30% of patients present with a rash, never mind a bulls eye rash. Old information that is just plain wrong. I certainly never saw a rash and I tested positive by CDC standards only after sending my blood off to a reputable lab. I had my blood tested a number of times before, with only one or two LD bands showing. I was refused treatment. Thanks, Cornell for spreading that myth worldwide.
       Secondly, they claim it takes 3-5 days for the spirochete to reach the brain. What a crock. The spirochete can get into the bloodstream in seconds, and reach the brain in hours. Again, this comes from my well rounded study of many researches.
       I think all the presenters believe the recent CDC guidelines are correct! They say it is based on research which does not conclude that Bb and co-infections need more treatment than the three weeks. Wish that was true for me. And so many others I have had contact with. Makes me mad.
      The panel continued to refute other research such as the Embers monkey research. They would not agree that lyme infections can persist actively after treatment. Even after IV treatment.
       That's about it for me. I will say there was very interesting information on upcoming research looking at diagnostic markers and test development. I pray the right person is doing the research and presenting a true tool.
       I had thought for some reason TBDA was on the same track as the research which is out there in other places. Evidently I was wrong. Another fine example of the competition between researchers to be THE ONE to find the 'cure', 'test', 'marker', 'effective treatment'.
       Oiy Vey