TBDA show Response

      I just finished watching the TBDA 'show', as they called it, (appropriately) and can't resist a few comments. First of you should know that concentrating that long (1 1/2 hrs.) has made my brain go into the 'brain fog' stage they spoke about. So, I will keep it short for today.
      I just had to shake my head at the first slide shown which said 60-75% of all Lyme patients have the bulls eye rash. NOT. How can they ignore all the patients and other research that has shown this not to be true. In my research, I look at all sides of the issue.  The consensus  I have come to is that approximately 30% of patients present with a rash, never mind a bulls eye rash. Old information that is just plain wrong. I certainly never saw a rash and I tested positive by CDC standards only after sending my blood off to a reputable lab. I had my blood tested a number of times before, with only one or two LD bands showing. I was refused treatment. Thanks, Cornell for spreading that myth worldwide.
       Secondly, they claim it takes 3-5 days for the spirochete to reach the brain. What a crock. The spirochete can get into the bloodstream in seconds, and reach the brain in hours. Again, this comes from my well rounded study of many researches.
       I think all the presenters believe the recent CDC guidelines are correct! They say it is based on research which does not conclude that Bb and co-infections need more treatment than the three weeks. Wish that was true for me. And so many others I have had contact with. Makes me mad.
      The panel continued to refute other research such as the Embers monkey research. They would not agree that lyme infections can persist actively after treatment. Even after IV treatment.
       That's about it for me. I will say there was very interesting information on upcoming research looking at diagnostic markers and test development. I pray the right person is doing the research and presenting a true tool.
       I had thought for some reason TBDA was on the same track as the research which is out there in other places. Evidently I was wrong. Another fine example of the competition between researchers to be THE ONE to find the 'cure', 'test', 'marker', 'effective treatment'.
       Oiy Vey

Thank God that's over. (I hope)

    I just love  a good herx. One of my favorite things to go through. NOT. This time I had various symptoms as described in last couple of posts. It went on for about three or four days. Don't tell my doctor, but I stopped my meds. two days early because I could not take the nausea. Even though, I experienced the herx full through. I think. I am still uncomfortable and my left shoulder and neck have a severe burning sensations. So, it may not be over, or it may be an 'episode' that will go on for a while. I just never know.
   What I do know is that it feels good to move on from the nausea because that is one thing I can't take. There is nothing one can do to get away from it. Same with a fever. It makes me unable to function. And, even after all these years, I still take a day or so to realize it's the fever making me feel bad. My fevers run from 99 - 102. (my normal temp is 97.4) As soon as the fever lifts I have energy. So I go like crazy, then up pops the fever again. One of these days I'll learn to lay low long enough to really be well before I get going again. My fever lifted yesterday, came back last night, and now today seems to be gone, although I overdid it today again. It's just that it is so hard to be the one (for years, and in my case decades), who is too tired, too sick, too stiff, too feverish, too brain dead to be of any good to anyone. I believe even above the very serious pain I have been in, not being able to help, to feel like I am contributing, is the hardest thing.

Add sweats to that

     Nausea, yes. low grade fever, yes. confusion, yes. clumsiness, yes.
     sweats, yes. Soaks between my ribs, yes.
     Herx, YES.
     Menopause, no. I know my herxes.
     Go, body, go! Fight, fight, fight!

Makes me Nauseous

nausea. nausea. nausea. nausea. vomit. nausea. nausea. ginger tea. nausea. sleep. wake nauseous. nausea. nausea, nausea.....

I'm Tired

       I haven't been feeling great for a while, those bugs must have become active during my holiday.  It amazes me that after all the years of treatment, time, and all the money spent, that they still live in me! Gross!
      Apparently, as I mentioned before, the thought is, that I am still harboring bio-films. The hardest place to root out spirochetes is from inside a bio-film. I have no idea, truthfully, but I picture the bio-film as being somewhat like frogs eggs in a pond. A covering that is viscus, gel like, and strong. Every once in a while, something triggers my symptoms to raise their ugly head, because spirochetes have exited the biofilm, and are munching. It can be any symptom, depending I suppose, where ever the spirochete lives, it will start there for nourishment. I wish I could pin point them in my brain so I could see the area where they are vs. the symptoms I have.
     This time around I have had just no energy at all. I wanted to sleep all the time. I have pain in my neck and shoulder. Always a sign that a 'good one' is coming. Yesterday I spent the day in bed with more nausea than I knew what to do with. Epsom Salt baths every night roots them out, but risks a herx, or increase one already in progress. But then, that's the name of this game.
 

RIP

  All of a sudden I am receiveng these type of reports.

  RIP George and Jonalyn Strobes, of Texas. Late stage Lyme suicides. July 2010.

Journey Thru Lyme video 001