RIP

  All of a sudden I am receiveng these type of reports.

  RIP George and Jonalyn Strobes, of Texas. Late stage Lyme suicides. July 2010.

Journey Thru Lyme video 001

'Needy Meds' to Help Save on Medical Costs

'Needy Meds' to Help Save on Medical Costs

hmm, I worked with autistic children, I've wondered...

Long term antibiotic therapy may be an effective treatment for children co-morbid with Lyme disease and Autism Spectrum Disorder

RIP

Jeremiah Katches from Auburn CA. RIP
Don't even try to say Lyme is not deadly. My doctor saved my life. Thank you Lord for leading me to him.  I was dying, then I went to him. I am alive and doing well.

another RIP

Keep reading, the Lyme part is toward the end. :(

Hugh Wiberg: A man who loved his family, outdoors, and sports - Wilmington Town Crier: Sports: The voice on the phone sounded willing, but not all that able. Hugh Wiberg, one of the nicest men that this writer has ever met, was just bein…

my dog

     I never know what the day will be like when I get up. This morning, out of the blue, my dog has a seizure. Turns out the seizure went on a total of about 1/2 hour. She was contorted and looked very strange. In between she would rest, and pant, for a few minutes before seizing again.I have never witnessed a seizure before, but my friend, Debi has a dog who has seizures. She told me you just have to be with them until it is over. Their dog was immediately better, walking around afterward. We went off to the vet after a phone call, and learned a lot about seizures. Her seizure could have been life threatening, because it went on so long. If it happens again off to the vet again we go, right away.
     In my little Lyme world, steam was coming out my ears from thinking. I know Hallie had a positive Lyme test when she was a puppy. She was treated right away with three weeks of Doxycycline. I know seizures can be a part of Lyme. I  take seizure medication myself. She has shown no other symptoms though. The vet said dogs who have epilepsy usually have their first  seizure around the age of 3-4. Hallie is 31/2.
     Hallie was down and exhausted all day after that. She was lying down with all limbs and head just glued to the floor.
      Today I noticed a very sullen looking dog. Then she raised her front paw the same she did during the seizure. She did not go any further. It is like she knows she is not the same. She is looking sad today. Lying by herself and not playing. I feel so bad for her.

Dr. Eva Sapi - Bacterial Biofilms and Lyme Disease

Done with next Treatment Cycle

     I finished my antibiotic treatment for this month. It seemed like a tough one. I have felt too much like a chemo patient to do much of anything. Fatigue reared its ugly head, as did the 'sit and stare' episodes. I felt weak and dropped a lot of things. I have lost a number of casserole dishes during these times.
     Dr. J also changed a pain medicine and that took a while to titrate up to a useful amount. This made a me little nauseous at times.
     I took a lot of naps. I always felt a little more energetic after my nap. I had been able to be active until about 3-4 in the afternoon, and went to napping by 1:00. I haven't experienced that kind of fatigue in a long time. Sometime during the IV treatment it stopped.    
     I still feel good in an important way. I feel overall better than than in a very long time. I know I am down to fighting biofilms. Other bacteria and parasites have been cleared for the most part.  I can have a break out of symptoms when the spirochetes exit the biofilms and party in my body. I still need to watch when symptoms flare. I'd love to get to the point where I treat myself just at times when I am experiencing symptoms.
     Now I am on vacation, or 'holiday' from treatment for the next 2 weeks. During this time I will be sure to detox and use my supplements so my own immune system can get stronger. The less symptoms during holiday the better. It means your body is holding up on it's own. I just need that to be happening all the time.
     I am getting there, and I know that.

Ode To Lyme

                                    Ode To Lyme

          "I'm tired"

          "Oh, I get tired too "

         My neck hurts

         oh, I know how that is, I hurt my neck last year.

        My joints hurt

        I have arthritis in my knee

        I get heart palpitations

        I get them too

        I keep having low grade fevers.

        My kid has a fever

        I feel like I have the flu.

        I had that a little while ago.

        I can't remember

        I forget things all the time

        At the same time I feel like I just want to sit and stare, can't get up to get a drink for
        45 minutes; have shoulder, arm, finger, and leg spasms. I hit the wall of fatigue and
       sleep.

        I don't

        I know.

                           

       Amy Jo
    Maine Lyme Lady

             

Flu with a twist of Lyme

I've been out sick for the past week. I still don't feel like it's gone completely. It is true that symptoms of Lyme become more obvious at times of stress. The flu is stress. So I ended up with some kind of misery for three days and the rest of the time not having the stamina to do much of anything. When I questioned my doctor at my apt. last week about how stress brings out symptoms I haven't felt in a long time. Basically he reminded me we are still dealing with bio-films.  I'm assuming they are the same bio-films I'll be dealing with for a long time.