Monday, November 12, 2012
Today
OK, haven't got the nerve to start, but I am going go take about 6 antibiotics and detox pills right now. That's after taking four supplements and five prescritions of support to treatment. Here I go. If you don't hear from me for a while send me a post of encouagement!
Sunday, November 11, 2012
Next Treatment Cycle
Holiday over, new treatment cycle starts tomorrow. This time I had limited herxing. A big change from the past. No longer do I have the night sweats, nightmares, heart palpitations, blackouts, Lyme Comas, the list could go on. However, I still get anxious starting a new treatment cycle. It is tricky business to keep everything in balance. It means sticking to my supplement schedule every day, at the specific times, most beneficial. It means detoxing daily, to decrease the herxing during holiday. (steam baths/Epsom salt baths/green tea/lemon water/ and especially finding limited exercise to make me sweat it out.) It means sticking very close to my diet. (which I have been slacking off on this holiday) It means taking all prescriptions at all the right times. It means taking all antibiotics and supports at all the right times. Like I said it is a lot of work, and a delicate balance. Even though I know this is a good thing, it is going to create a sickness of sorts as I kill off and detox the bugs etc. from my body.
No rest for the weary, on or off treatment. Thank God I have improved or there would be no incentive to go on.
No rest for the weary, on or off treatment. Thank God I have improved or there would be no incentive to go on.
Friday, November 9, 2012
Face Book Page
FYI: I have recently started a face book page. This page is for information, treatment strategies, and support. Please check out this Lyme focused page and leave a comment.
You can find it at: Lyme Disease/Maine Lyme Lady.
Wednesday, November 7, 2012
ILADS Action - URGENT CALL TODAY to comment on Lyme Disease objectives to be added to Healthy People 2020ILADS Online Store and Media Center
A VERY IMPORTANT CALL TO ACTION FOR LYME SUFFERERS! ILADS IS THE MOST RESPCTED ORGANIZATION FOR THE LYME COMMUNITY. PLEASE SUBMIT ASAP!!
ILADS Action - Urgent call to comment on Lyme Disease objectives to be added to Healthy People 2020ILADS Online Store and Media Center
ILADS Action - Urgent call to comment on Lyme Disease objectives to be added to Healthy People 2020ILADS Online Store and Media Center
Tuesday, November 6, 2012
UNH prof closes in on Lyme disease breakthrough- The New Haven Register - Serving New Haven, Connecticut
Exciting. Eva Sappi worked with Dr. Alan MacDonald, who discovered the biofilm. They both continue to work on being able to break it up and get to the bacteria enclosed in the biofilm. Something no one seems to be able to do. Knowing this, is it any wonder Lyme is invincible? Another note of interest, Lyme has been around LONG before the Lyme CT. outbreak.
UNH prof closes in on Lyme disease breakthrough- The New Haven Register - Serving New Haven, Connecticut
Monday, October 29, 2012
Thursday, October 25, 2012
Lymemares (nightmares)
Nightmares are often a part of late stage Lyme Disease. I have had many nightmares over the years. I can even recall a repeating nightmare in my youth. In my late teens I began to have nightmares. By the time I was in my late twenties, and especially in my thirties and forties, nightmares were a regular part of my life. I often woke in a night sweat trying to scream and flailing around in the bed. My husband often woke me to stop me. He said I was kicking him and making noises like I was trying to talk. The nightmares had a common theme of some disaster happening and my having no control over it. Or I would be watching something horrible. Or something horrible was happening to me. I never will relay the images I saw because thy are so gruesome I don't want anyone else to have these imposed on them. However, I can tell you there was light at the end of this long tunnel.
The treatment I received from the doctor in Boston did not stop the nightmares, but increased them. Nor did he ever ask me if I was having nightmares. When I had my initial meeting with Dr. Jemsek that was one of the questions he asked. I was so symptomatic that I did not think to ask him any questions, never mind why he asked about nightmares. All I could say was yes, I had them. Later in treatment, when I had my senses back again, I did ask. It seems, (now this is layman's terms, only from my experience) that inflammation in the brain stem and in the brain can cause nightmares. My interpretation is that the brain is the hot spot for spirochetes to harbor themselves. They love the nervous system and of course the brain is the motor driving the nervous system. When the brain has inflamed areas, that inflammation, in severe cases, continues down the neck and into the spine. Then can invade joints, etc.. Inflammation from spirochetes, their biofilms, and excreted toxins are again the root of inflammation. Inflammation, in a particular part of the brain, causes nightmares when due to Lyme Disease.When I was treated correctly for my late stage Lyme, my inflammation went down in my brain and, and guess what? NO MORE NIGHTMARES!!! I have not had a nightmare since being treated correctly for Lyme Disease and co-infections. I only have good dreams. I am reminded of this today because last night I had a very funny dream, and I woke up almost in disbelief at the difference in me. I cannot even express the gratitude I have at being treated in such a way that my nightmares have stopped. Not only have nightmares stopped. but joint pain, brain fog, overwhelming fatigue, and all the other symptoms have either disappeared or diminished. I am still in process, and may have to work on this my entire life to maintain where I am, but to me, in comparision to where I was for so many years, it is like death to life.
The treatment I received from the doctor in Boston did not stop the nightmares, but increased them. Nor did he ever ask me if I was having nightmares. When I had my initial meeting with Dr. Jemsek that was one of the questions he asked. I was so symptomatic that I did not think to ask him any questions, never mind why he asked about nightmares. All I could say was yes, I had them. Later in treatment, when I had my senses back again, I did ask. It seems, (now this is layman's terms, only from my experience) that inflammation in the brain stem and in the brain can cause nightmares. My interpretation is that the brain is the hot spot for spirochetes to harbor themselves. They love the nervous system and of course the brain is the motor driving the nervous system. When the brain has inflamed areas, that inflammation, in severe cases, continues down the neck and into the spine. Then can invade joints, etc.. Inflammation from spirochetes, their biofilms, and excreted toxins are again the root of inflammation. Inflammation, in a particular part of the brain, causes nightmares when due to Lyme Disease.When I was treated correctly for my late stage Lyme, my inflammation went down in my brain and, and guess what? NO MORE NIGHTMARES!!! I have not had a nightmare since being treated correctly for Lyme Disease and co-infections. I only have good dreams. I am reminded of this today because last night I had a very funny dream, and I woke up almost in disbelief at the difference in me. I cannot even express the gratitude I have at being treated in such a way that my nightmares have stopped. Not only have nightmares stopped. but joint pain, brain fog, overwhelming fatigue, and all the other symptoms have either disappeared or diminished. I am still in process, and may have to work on this my entire life to maintain where I am, but to me, in comparision to where I was for so many years, it is like death to life.
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