mainelyme.org

   I have posted this before, I think, but have included the link to the site on my nav. bar. It is a very good site, with lots of accurate information that still does need to get out there. I am still amazed that there are people who just don't know about tick born diseases at all! Helllllo?!! Oh well, my world is little too.
    Make good use of this site, bookmark it, email it, study it, etc., etc., and pass the information on to your friends and wee little ones as you take your fall color walks this week.

#90: Chronic Lyme Patients Validated | DiscoverMagazine.com

#90: Chronic Lyme Patients Validated | DiscoverMagazine.com

Into the Lyme Journey: Brain Fog- Will it ever go away??

Into the Lyme Journey: Brain Fog- Will it ever go away??: Over the last few years I have experienced slowing of my cognitive abilities. For me, this has been a big deal because I am kind of a dorky...

interesting blog!

The Big Gross Out

     Today I am going to try to forget I have Lyme Disease. (actually I do that a lot) I can only do that because I can stand again, I can walk again, I can drive short distances again, and I am not nauseous EVERY minute, but a lot of the time. Do I still have pain? Yes. Do I still tilt and walk into walls? Yes, a little, and I don' drink...(but I can prove with all the bruises on my legs) Yes, I still struggle emotionally and mentally with the disease.  
      I'll tell you a secret: I am totally grossed out by the fact I have these bugs in my body. The first few years I really could NOT deal with it. It is sooo very gross. It was an emotional drain, and a mental issue, dealing with the reality of what was, and still is in my body. Of course after a decade + I have learned to push that truth into the back of my mind, and focus on things that make me happy. Even if it is watching the birds at the feeder because I am too tired or nauseous or whatever to do anything else. I have learned even more than ever, it's the simple things in life which have the most meaning. I've always appreciated the little things, but not like now!
     It is a blue skied day in Maine and it should be in the 60's. I am determined to go out. Bringing old but nice clothes to a local store for consignment. A couple dollars is a couple dollars. When medical bills wipe you out, all of a sudden a few dollars has more meaning! I'll enjoy my day. I'll pay for it in pain, nausea, fatigue, etc., but I can go out! That's big for me.

Almost Forgot

The past few days have been filled with nausea, fatigue and even low grade fevers. I was under a comforter, blanket, flannel sheets and even had a heavy sweater on over my 6 layers of clothes. That's one way I know it is a fever. Can't get warm. I laid down most of the day. I had been doing my typical daily detoxing but it was time for a deep detox. So, I spent an hour in a HOT Epsom Salt bath, with herb and fruit filled water to drink. Nice. I didn't feel great right away, but this morning I am moving more easily and no fever or extreme fatigue. BTY; when I do ES (about 2 cups/high bath water),
I rotate between sitting in very hot water to lifting my body into cold air. Hot/cold is good for getting the lymph system to drain.. I even hold my nose and dip my head a few times. I make sure the water is high enough to reach the lymph nodes in my neck, and my liver gets hot/cold too. With the hot/cold, and steam bath, ES, drink, and a day in bed, I am doing better. It just seems I almost forget how bad it can be when poof, it comes out again. I have another week or so before I begin the lacctiferrin/zylitol protocol once more, and that will bring on another challenge. Bring it on!

Lyme suicide Hotline

Lyme suicide Hotline

PLEASE USE IF YOU NEED TO!  OOXX

lacctoferrin/xylitol effects

    OK, there now, so I am doing better than in my last post and I will just leave it at that. I knew something was up, but I was all confused about dates of treatment so I didn't put it all together. I had two weeks of treatment with the new lacctoferrin/xylitol, and it ended on a Thursday instead of a Saturday. That's all it took and I was thinking I had been on holiday for a week when it had only been four days. (Fri-Mon.) I wrote that last post right after that. Here's the thing; I did not feel well, but I wasn't recognizing it as a herx. Instead of the usual, pain and nausea, etc., I was feeling flue-y, thought I had a low grade fever for days, was irritable, emotional, and had stiff man. My stomach just wouldn't feel right. It wasn't until I was writing in my daily medical journal (I have 12 years worth of history in them) when I realized that it had only been a few days after treatment that I was feeling gross. It struck me this was a herx, a little different, but a herx, undeniably.
     I also realized that the laccroferrin/xylitol treatment had worked. When I was taking it, I was thinking, "this doesn't seem to be doing anything". Yeah, right. I am guessing that the biofilms were indeed getting broken by the treatment, and the 'afterwash' of spirochetes running for their lives, toxins being released, and symptoms showing, that
ah haaaaaa, it was indeed a hex. It lasted a long time, and I still feel a bit 'heavy with toxins', but much better in all the other ways.
     You would think by now I would recognize a good old herx when it happens. I have come to know, though I seem to forget, that symptoms of a herx ARE NOT ALWAYS THE SAME. I truly believe it depends on where in the brain or body the bugs are being killed off. Where ever the bugs are found when killed, or broken up, messes with the signals in that area. This is why we can show different symptoms in herxes.
      I am taking this as a good sign now, though not fun. It means we are moving around, killing off those little buggers in different places. Oh will it ever end? Yes, I am willingly  taking the treatment because it works and I have gotten so much better than I have been in over a decade, but it is still hard to do. I can look back over my medical journals and see the sequence of herxes and the symptoms I had with them. One day I will put it all together in a comprehensive sequential book. Now won't that be a fun read?
       I'm fine,  just venting and surviving. Feeling much better last couple of days. I have learned to wait it all out.
      Blue skies here today in Maine and I am going to make some pesto with fresh basil that needs to be picked. Plus ,my neighbor brought me some last night, so it will be a nice big batch. yum! Yesterday I had another neighbor bring over raspberries from her garden, so I mad a gluten free (cane and artificial) sugar free crumble to die for. I used some raspberries and basil in my antioxidant water and yum! You should try raspberries seeping all night, it is so good on the gut, and surprisingly I am hooked on basil or sage in there. They add great antioxidants and flavor. I never knew.. but now I do. We may even go to lunch today, on the water because it is so pretty out. Maine, I love you!
     um, spell check not working.......