Today there was no pretending when I had to fill out the forms for my appointment. Dr. Jemsek now has a patient portal on his web-site. I can download a form to fill out and bring to discuss with him. Better to have a few days to think it over and write answers, than to try to remember on my own, or leaf through my notes, when he asks how things are.
The first question is: What are your three biggest concerns right now? I answered for two so far. Fatigue, and limb weakness. I tested this against my husband, and not so surprisingly, he said the same thing. There a lot of 'number threes', so I will think about it. I'll have all day Thursday in the car to write that one down. I am eager to have a discussion with Dr. J about my progress so far and where he sees me along the spectrum. My secret mission is to 'take the summer off' and see how I do. I'm not sure if that is a good or bad idea. I still suffer from the revenges of Lyme Infections, but even today, the suffering I have is about 10-20% of the suffering I had 2-15 + years back. Ooh La La, I don't think I could take that. This is bad enough thank you. I don't know how I did it. I don't know how an of us does it.
"I tell you, take up your mat and go home". I'm taking it.
