Saturday, February 16, 2013

Done with next Treatment Cycle



     I finished my antibiotic treatment for this month. It seemed like a tough one. I have felt too much like a chemo patient to do much of anything. Fatigue reared its ugly head, as did the 'sit and stare' episodes. I felt weak and dropped a lot of things. I have lost a number of casserole dishes during these times.
     Dr. J also changed a pain medicine and that took a while to titrate up to a useful amount. This made a me little nauseous at times.
     I took a lot of naps. I always felt a little more energetic after my nap. I had been able to be active until about 3-4 in the afternoon, and went to napping by 1:00. I haven't experienced that kind of fatigue in a long time. Sometime during the IV treatment it stopped.    
     I still feel good in an important way. I feel overall better than than in a very long time. I know I am down to fighting biofilms. Other bacteria and parasites have been cleared for the most part.  I can have a break out of symptoms when the spirochetes exit the biofilms and party in my body. I still need to watch when symptoms flare. I'd love to get to the point where I treat myself just at times when I am experiencing symptoms.
     Now I am on vacation, or 'holiday' from treatment for the next 2 weeks. During this time I will be sure to detox and use my supplements so my own immune system can get stronger. The less symptoms during holiday the better. It means your body is holding up on it's own. I just need that to be happening all the time.
     I am getting there, and I know that.

Tuesday, February 5, 2013

Ode To Lyme

                                    Ode To Lyme


          "I'm tired"
          "Oh, I get tired too "

         My neck hurts
         oh, I know how that is, I hurt my neck last year.

        My joints hurt
        I have arthritis in my knee

        I get heart palpitations
        I get them too

        I keep having low grade fevers.
        My kid has a fever

        I feel like I have the flu.
        I had that a little while ago.

        I can't remember
        I forget things all the time

        At the same time I feel like I just want to sit and stare, can't get up to get a drink for
        45 minutes; have shoulder, arm, finger, and leg spasms. I hit the wall of fatigue and
       sleep.

        I don't

        I know.
                           
       Amy Jo
    Maine Lyme Lady
             

Flu with a twist of Lyme

I've been out sick for the past week. I still don't feel like it's gone completely. It is true that symptoms of Lyme become more obvious at times of stress. The flu is stress. So I ended up with some kind of misery for three days and the rest of the time not having the stamina to do much of anything. When I questioned my doctor at my apt. last week about how stress brings out symptoms I haven't felt in a long time. Basically he reminded me we are still dealing with bio-films.  I'm assuming they are the same bio-films I'll be dealing with for a long time.

Friday, January 25, 2013

MML Face Book page

I have some articles and information on my FB page which I cannot get on here. Please check facebook.com/groups/mainelyme lady.