Thursday, September 20, 2012

Preparing For My Appointment

  Today I will start putting together the information I will need for next weeks apt. with my Lyme doctor. We will travel to D.C. on Sunday, have the day Monday, then head back home Tuesday after my morning appointment. It is a lot just to take the quick trip, and my good husband does all the driving. Yes, I can still drive, but in the past I have gotten so tired driving I have had to pull over and sleep. A few times I fell asleep at the wheel for a second. One time, I fell asleep while my husband was with me (after a long day at the beach, before treatment). He had to grab the wheel. Thank God he was there, because we had our two kids in the back seat. Needless to say he took over the wheel. Since then, well, let's say he is cautious, and leave it at that.
   I always prepare  by writing down my endless questions, my med list, my supplement list, and my herb list. I bring my journal to be able to report accurately the symptoms I have been experiencing. The symptoms have decreased dramatically since I first began with him in January of 2011. This is a great encouragement. Fortunately, he takes his time to answer questions and explain to us what is happening inside my body.
   So I press on.

Wednesday, September 19, 2012

Lyme Conundrum

My first day back on meds was Monday. I was nauseous all day and had what I call "Mepron Head". Can't describe it, but it comes with the medicine.  Yesterday I slept 4 hrs in the afternoon. I was exhausted. A busy weekend plus starting back on meds = a very tired, cranky person. I take meds Monday, Wed., and Friday when "on". So, today, I as usual, took my probiotics before meds ~ 1/2 hour before, and included some Zofran. (anti-nausea). It did help. Although I am desperate for a rest right now. Killing bacteria and parasites, as you know, just fills you with toxins that you have to get rid of. That's the 'fun' part. When they exit your body.  My body is working very hard inside of me. I can't see, but I can feel it. You can't see it and you can't feel it, in me. That, at times, is a conundrum. Time for a rest.

Monday, September 17, 2012

TBDA Diagnostic X Prize - Making the Impossible Possible


Lyme Holiday Over Again

      Today I start another two week round of Lyme treatment. It is always hard to psych myself into it because the one parasitic drug I take right now tastes DISGUSTING.  It is a liquid. Mepron. I need to remember to DETOX every day, keeps the herxing to a minimum. I am not saying 'holiday' is easy, ( although it is much easier than in the past ) just less meds.. I have two weeks 'on' and two weeks 'off'. My motivation is the great improvement I have had over the past year under this doctors care. Yes, I still deal with symptoms here and there, but much milder and lasting a lot shorter in duration. I certainly wouldn't be able to blog if not for the treatment. 

Saturday, September 15, 2012

still dealing with symptoms

This week has been mixed. I lived with a low grade fever for two weeks prior and it finally broke a couple of days ago. It is hard to imagine, I know, that a 1-2 degree temp. can slow you down to a crawl, but it is true. I have been 'on holiday' for the past two weeks from my Lyme meds, so my immune system has been getting a work out. I believe it handled things pretty well this time around, although obviously I still have an infection to deal with. It's like your mom or doctor used to say: a fever is your own body's way of fighting an infection by itself. Let it run it's course so it can do it's job. I did, and it did eventually go away. I remember with way too much clarity the YEARS I spent with fevers that lasted 6-10 weeks at a time, and no one took it seriously. I rarely had a fever break. It was awful. At that time I was full of pain in all my joints and could hardly walk, or eat, at all. So, in retrospect, I guess a two week fever, on holiday, in not all that bad. I go see my D.C. doc soon.